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New Video clip about the ERN-EYE

ERN-EYE is a network dedicated to Rare Eye Diseases, the leading cause of visual impairment and blindness in children and young adults in Europe.

Rare Eye Diseases display major heterogeneity and represent the leading cause of visual impairment/visual loss in children & young adults. Significant barriers remain for early diagnosis, patient management & research. EU experts decided to join forces in a European Reference Network.

The vision of ERN–EYE is dedicated to EU patients with RARE EYE DISEASES (RED) bringing expertise and knowledge for immediate and future best care.

The ERN-EYE will have the following objectives carried out by the subthematic and transversal teams:

  1. Facilitate improvement in diagnosis and delivery for health care: by electronic strategies developed in a virtual Eye clinic EyeClin including diagnostic, genetic and care expertises  
  2. Facilitate mobility of expertise: by producing guidelines, EU wide training/education programm, sharing expertise in the EyeClin system with EU experts
  3. Exploit innovations in medical science and health technology: by empowering clinical trials and by patient centered approaches for research
  4. Reinforce research and epidemiological surveillance: by the design and use of an ERN-EYE registry and by bottom-up research projects generated or stimulated by ERN-EYE
  5. Help member state(s) with insufficient number of patients: by promoting affiliated partners with full access to the ERN-EYE services, by the use of EyeClin eventually facilitating cross border referral, by exchanges and training/education

More information about ERN-EYE under