The aim of all films should be to shine a spotlight on rare diseases – raising awareness for patients and all those affected. While rare diseases usually have negative connotations in the public perception, we want to use film as a medium to set a new narrative: Diseases are more than just suffering. Diseases also bring moments of laughter and companionship, redirect what one considers important, and forces individuals to define new personal priorities. All of these components are part of an outstanding story waiting to be told.
This festival is also an opportunity to build a bridge between creative artists and a reality often removed from public perception: "Rare diseases" are often viewed as only affecting a few, but in reality, there are approx. 350 million rare disease patients around the world, with families, loved ones, and communities also being strongly impacted. As you can see, we are confronted with a large group of people who all too often fall through the cracks, because their disease pattern is often not recognized in time or because therapies simply do not exist yet – a responsibility we have as a global community to change.
While we of course want to recognize artistic achievements, we are just as interested in shining a spotlight on rare diseases and highlighting the perspective of the patients and their families as well as their environment. The categories listed provide a broad framework, allowing for creative freedom. Once again, we would like to stress that when we recognize a story being told, where we see the impact that such a rare disease has on the individual, and when it becomes perceptible - at whatever artistic level - our attention and recognition will follow.
Our mission must be to create a stage for those affected, and in this case, film is the tool to do so. At the same time, this film festival also serves as a chance to create an attention-deserving niche for filmmakers. Rare diseases will increasingly be brought to the public’s attention over the coming years as rare diseases are in fact, not rare at all. With this film festival, we hope to truly depict that.
The Film Categories
Entries were accepted in the following categories:
- Documentary
- Short
- Experimental/Animated
You will find the Rare Disease Filmfestival Finalists under https://www.centogene.com/rdff/finalists.html
Congratulations to our International Rare Disease Day Filmfestival winners!
By sharing stories on the unique challenges rare disease patients face every day, we can continue to raise awareness together.
- ‘This is not a Person’ by Miguel Rodríguez and Pablo Ostarek
- ‘Lumen’ by Sarah Seené
- ‘Fraser Syndrome & Me’ by Kyle Anne Grendys
Our second set of winners tackled the subject of COVID-19 and shared insights on what the ‘new normal’ now looks like.
- ‘Bastaa’ by Pulkit Tomar
- ‘Buonanotte/Goodnight’ by Yohana Ambros
Thank you to all the filmmakers who entered. Watch the finalists’ films on demand this Rare Disease Day: http://link.centogene.com/37QG50a