The day will be celebrated with many diverse events designed to provide information on this important subject across Europe, The United States and Latin America.
The purpose of International Rare Disease Day is to raise awareness of rare diseases and of their impact on the lives of those affected, their families and society as a whole. It is hoped the day will reinforce the importance rare diseases as a public health priority. The event is organised by members of the European Rare Diseases Organisation (EURORDIS) and its international partners.