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Rare diseases should not be orphaned

The European Union defines a rare disease as as any disease affecting five or fewer individuals per 10,000—and most are due to nothing more than a mutation in a single gene.

That may not seem like much, but if you are one of the individuals or families unfortunate enough to be genetically pre-marked for cystic fibrosis, Huntington's disease, or one of the muscular dystrophies, just to name a few, such diseases are very real and very often devastating.