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Rare Diseases 360° – collaborative strategies to leave no-one behind

Join us at ECRD Vienna 2018 (10-12 May 2018) to discuss and reach solutions on how we can look to the future to improve the lives of the estimated 30 million people living with a rare disease in Europe and 300 million worldwide.

The European Conference on Rare Diseases & Orphan Products (ECRD) is the largest multi-stakeholder gathering in Europe for the rare disease community. It covers topics including research, medicines, healthcare, social care, public health policies, and support at European, national, regional and international levels. Organised by EURORDIS, for the first time Orphanet is co-organising this key event in the rare disease calendar.

The overarching theme for ECRD 2018 'Rare Diseases 360° collaborative strategies to leave no-one behind' reinforces the unique quality of this event for the rare disease community in Europe, which brings together and facilitates effective policy discussions between all rare disease stakeholders.

It also encompasses the comprehensive range of topics covered at the conference and the viewpoint of rare disease patients as equal experts, representing all rare diseases, across borders.

Focusing on six themes (https://www.rare-diseases.eu/programme/), participants at ECRD will discuss and set out next steps on how to shape better research, policies and services that improve patients access to the best possible medicines, healthcare and social policies and services.

We need to accelerate the momentum we have built over the last 20 years to ensure no single person living with a rare disease is left behind.

Join us at ECRD Vienna 2018 (10-12 May 2018) to discuss and reach solutions on how we can look to the future to improve the lives of the estimated 30 million people living with a rare disease in Europe and 300 million worldwide.

Early bird registration fees close on 15 March 2018: register here. https://www.rare-diseases.eu/register/

Confirmed speakers include :

  • Chris Austin, Chair of the International Rare Disease Research Consortium
  • Lucia Monaco, Fondazione Telethon
  • Vivienne Parry, Genomics England
  • Kristina Larsson, EMA
  • Tapani Piha, DG SANTE, European Commission
  • Ana Rath, Orphanet
  • Stefanie Weber, DIMDI
  • Avril Daly, EURORDIS
  • Anders Olauson, Agrenska

Consult the programme online. https://www.rare-diseases.eu/programme/